ANGRY GIRL

Forgiveness is an act of commitment.

Forgiveness is psychological, not moral.

I’ve just discovered this incredible blog by Nick Wignall. It has already given me clarity on some of my “life issues”, good lessons in this confusing yet beautiful school of life.

The most recent one I’ve read is about anger, and consequently, forgiveness, both tricky issues to deal with even as an adult. This article wrapped up a lot of confusing emotions and tied ’em up with a beautiful bow. The following is a summary of what struck me hard, but be sure to check out the article as written, too. Because something different might resonate for YOU.

Last year, both of my parents died about 7 months apart, and I made four separate flights back home. One each to say goodbye, and one for their respective memorial services.

I had already done a lot of work surrounding forgiveness. Long story short, there were many times where I was not protected as a young person, and I suffered from not only the damage done to me, but also suffered from the lack of compassion from those who could have done better. There were also times where I was kicked out of the family because I was so vile and despicable. I had to come crawling back, not sure what I had done nor why it had been met with such an extreme response.  And, like so many families, we were never–NEVER–supposed to talk about it, ever.

When a number of years ago, I realized my mother was now living with dementia, I knew I would never hear the words I was so desperate to hear. My work as a hospice volunteer taught me so much.  How to sit with a client who is nearing the end of their journey. To understand the difference between “fixing/curing” and healing.

I realized she could no longer be my mother. But I could still be her daughter. I saw her as a person who deserved my kindness, and compassion, and that helped me deal with both losses without losing my mind.

It also planted the seeds of forgiveness. It took time for me to really understand what true forgiveness is, but it started there.

I was still living with anger, though. Many members of our family had different experiences, due to our ages and…er…experiences. It felt like a contest for ages: Whose version was “right”, and whose was “wrong”.  How do we forgive people who are so sure we are doing it wrong? Especially when they never inquire what our own experience was like? Especially when we DID share those experiences, but remember them differently? Where is the truth when all we have is our own perception to rely on?

Nick covers forgiveness in the same way I finally reached it. Forgiveness does not mean “forgetting what happened” (because it is impossible to forget the pain). And it doesn’t mean the perpetrators are “off the hook”, and you have welcome them wholeheartedly back into your life. It doesn’t mean there has to be reconciliation–we are free to choose to protect ourselves, and we don’t have to accept “excuses” that are often at our expense. (For the record, “I’m sorry you got so upset” is not an apology.)

It’s about recognizing that other people are not under our control. We can only control ourselves, and there’s even a limit to that.

That’s where the anger issue came into play, and I love how he framed it.

Again, lots of quote and part paraphrasing:

Anger is a “positive” emotional feeling–we feel that we’re right and they are wrong. But it’s really an anti-depressant with potentially nasty side effects, and the consequences are often negative. LOVE THIS!

Anger helps eliminate sadness, boredom, feeling helpless, etc. It’s a crutch that makes us passive. It creates “opportunity cost”: Sucking up time and energy we could devote to learning better behaviors. It also reinforces our deep memories of the wrongs done to us. (Yup!)

The right approach, according to Nick, is to validate that anger. But don’t feed it. 

The way there is acceptance–not for that person’s actions/inaction, but to acknowledge and accept we cannot change the past.

Thinking we can change the past helps us feel more in control, but it’s an illusion.

As I read this, I began to understand where my own residual anger comes from:

I hate it when other people diminish my pain. “Oh, that’s not what they meant, get over it!” “I don’t remember it that way, so that means you’re remembering it wrong.” When compatriots agree with me “in theory” but still defend “the group”.

And the reason I ghost them, I now realize, is because it feels like the only thing I can control. I can avoid any further interactions, and avoid the snark, the disbelief, the snide comments, or subtle “betrayal” of not standing with you even though they know exactly what it was like for you

So I’m still learning about forgiveness, and I’m beginning to distrust my anger, especially as it often serves only to feed the flame, or grow the sadness.

The last take-away from this article is, forgiveness is not ONE decision. We have to get there over and over again until the process gets “learned”. And it won’t “feel good” in and of itself. Because not only can we not control other people, we can’t control how we feel. Feelings are part of us, forever.

We may be able to soften the feeling. (The common phrase in a grief support group I attended was about how grief never disappears, but it does “gets softer” as time passed.) But it will always be there. Feelings are us. (Apologies to Toys R Us….)

All we can control is our actions.

This was exactly what I needed to hear.

For years now, I’ve written about the power of our choices. 

We all have a lizard brain (aka “monkey mind”, “reptilian brain”, etc.) But when we learned to recognize those instinctive responses (anger?) to perceived danger (a rude customer, a snide family member), we can choose how we respond. We can choose “better”.

I am grateful that I found the way to continue the work of true forgiveness. I am grateful to find a better understanding of how my anger does not serve me, but I can never make it go away. I can choose to truly understand that in the short run, righteous indignation feels really good, but does not serve me in the long run.

And whether I have decades yet to live, or only a few hours, this is who I want to be.

This is who I can choose to be in the world.

LIFE, DEATH, FAME, FORTUNE, AND ART: What’s In It For YOU?

(This article was first published on September 1, 2018 on Fine Art Views)

It’s the little things that matter, and the story.

(10 minute read)

My Mom died earlier this year. Soon after, my pregnant daughter lost her first baby. And earlier this week, I took a redeye flight to Michigan to say goodbye to my Dad.

I got there just in time to say the things I needed to say. And although he was not “conscious” in our sense of the word, I know he heard me.

My hospice volunteer experience taught me so much. All of that was visible in my dad’s last few hours on this planet.

My dad was a long-standing, prominent figure in my little hometown. From a co-op dairy project started by my grandfather that eventually turned into one of only two family restaurants in town, (which also provided jobs to dozens, if not hundreds of teens and adults over the years), to his years of volunteering, (serving on school boards, supporting our church), socializing (visiting elderly former employees in their last years, meeting almost weekly with friends for bridge, for potluck dinners, for parties, hosting all his kids’ weddings in his backyard), he wove a winding path through our small farming community.

As life approaches the end, it gets smaller. Friends and family moved away, or died. The town got bigger, so more people were ‘strangers’. Eventually, his world was only as big as the assisted living staff, family members who remained nearby, the people he ate dinner with every night.

And of course, it all ends in a hospital bed, surrounded by those who loved him, holding his hand, whispering in his ear, saying a prayer.

His passing was peaceful, with little pain, and not much suffering, unlike those he leaves behind.

But this is how it goes. And this was as good as it gets.

Now for the next thread: Last month, a friend in New Hampshire told me of a friend of hers who found one of my horse sculptures at a yard sale.

Put a pin in that. (For those who don’t know what this means, it alerts you that I intend to circle back and connect all these little “bits” on this “bulletin board.)

I’ve just finished watching a Netflix comedy special “Nannette”, created by Hannah Gadsby, an Australia comedian who identifies as lesbian. Her comedy was searing, and hilarious, honest, and gut-wrenchingly powerful.

There were so many words of wisdom she shared as she told the hardest stories of her life, stories she had edited for pure laughs in her ten-years-plus career. This time, she said, she has to tell the whole truth. Because without it, we cannot truly understand her pain, the shame and humiliation she suffered because of something she did not choose, and how she rose and grew as a human being through her art.

She is, like me, also an art history major. And she spoke deeply and clearly about that, too.

Put a pin there.

I struggle writing for Fine Art Views. I mean, I LOVE writing for FAV! I love the people I’ve met through my columns, I love the respectful discourse, I love it when I see I’ve helped lift people’s hearts, if only for a day, by encouraging them to make their art.

I’ve been a professional artist for over 20 years now. I work hard at what I do. I’ve created a solid body of work. I’ve entered, and been accepted, into prestigious organizations, some of the top fine craft shows in the country, and sold work to some prominent people. I’ve educated myself about marketing, display, and customer service. I have a following on my blog, and a good-sized email list of customers.

But I’m not sure I can call myself a “successful artist”. At least not by the definition many people assign to that term.

In only a handful of years did I ever break the $20,000 income for the year. So, technically, I am at poverty level. (Fortunately, society values my husband’s work a heckuva lot more.)

So when a reader wrote recently asking for a favor, saying they knew I was busy because I am so successful, I felt a little embarrassed. Yes to the busy. Er…not so much for the “successful”.

And sometimes, although I know (and follow) most of the practices (that work for me) to advertise and market and sell my work, I can’t “prove” my credentials (no art degree! No museum shows!)

So who am I to advise you on marketing?

Simple. I am a fellow traveler. I share what I’ve learned. It’s up to you to decide if it works for you, or not. I simply have to write about it. It’s part of my story. 

Also, to be easier on myself, it’s possible I will become a tremendously famous artist after I’m dead. Like Van Gogh, and Emily Dickinson, whose poetry was never published in her lifetime.

I will never ever say that following my advice will guarantee you fabulous sales. I don’t have a $2,000 “product” (course, book, seminar, etc.) to sell you  that promises to make you famous, or rich, or even make enough money for the babysitter so you can do shows. ((except a few eBooks running around $5 each that will help you get toxic people out of your sacred creative space, and how to improve your display.)

Of course, that illusion of artistic success (“Van Gogh is a brand, and look how much his paintings sell for! Branding is the key!”) is just that: An illusion. More on that….

Let’s pick up some of those pins.

In her performance, Gadsby quotes people who rave about Van Gogh’s fame, framing it as a rags-to-riches story. “He was broke, and crazy, and starving, and now look at him!”

“But he’s dead,” she replies quietly.

“Yeah, but he’s very successful!” they argue back. They offer more “assumptions” on why his work was not successful in his lifetime, and why it is now.

She goes on. Van Gogh wasn’t “ahead of his time”. He was a Post-Impressionist painter at the height of Post-Impressionism. People didn’t “not buy” his work because his style was inaccessible.

He lived with severe mental health issues. He couldn’t “network” because he was extremely difficult to deal with. People crossed the street to avoid him. His “brand” was “crazy”.

His art did not spring from his illness. He sought help from psychiatrists, he was medicated, and some of his vibrant color choices were actually visual side effects from the medications he was on. He made his work despite his mental illness, because it meant so much to him.

Gadsby, with words that broke my heart, says, “We have Van Gogh’s sunflowers not because he suffered, but because he had a brother who loved him.”

And here’s where the Dad pin comes in.

My Dad was not a famous person. He was not extremely talented. He was not wealthy. He was not “artistic” (though he took up woodworking in his retirement.)

He was simply a good man, who provided for his family any way he could, because family was important to him. Someone who always did his best. All of us in the room knew he loved us, and showed it, the way he had been taught to show it.

And as he left this world, I know this for sure: He knew we loved him, too.

Now the back to the art marketing pin.

You can follow all the marketing advice in the world. You can brand yourself just like cowboys and steers. (That’s where the word comes from.) You can strive to get into those perfect galleries, those top shows, be featured in elegant magazines, and win Best-in-Show so often, the committee will eventually have to take you off the ballot every other year so that other, just as commendable artists will have a shot.

It will guarantee you nothing.

And even if it brings you wealth, and fame, in the end, we will still all end up in a hospital bed in our bedroom, working our way to our last breath. Hopefully, at peace, without pain, surrounded by love….

And with luck, no regrets.

No one came to tell my Dad what a great restaurant he ran. (It was very modest, not an haute cuisine thing. Just home-cooking, great ice cream, and pie.) No one came to tell him how his wealth and power inspired them. (He had neither.) No one ever rushed to grab his autograph, or have a selfie taken with him. There is no history book that will refer to him, ever.

People tell us he gave them their first job. People tell us he was generous with his time. People tell us he made them laugh.

As artists, we have a unique gift. We get to choose every step of the work we do. We do it our way. We make it our way. We get to choose how well we do it, we have some choice in where we show it, and who sees it (even more with the Internet), and if we’re lucky, we learn how to best connect with the people who will become our customers. We choose how to promote it, how to sell it, how to advertise it.

But none of these efforts can guarantee us success. Nothing and no one can ensure we will make a living, or even make very much money at all with it.

Hannah Gadsby suffered for years because of her trauma. She transformed that into a healing experience we can all benefit from. She shares what truly connects us: telling our stories; and what most assuredly will destroy us: anger, and hate.

Art is how we tell our stories. The medium does not matter. Stories can be told through oil paintings, pastels, clay, and stone. Polymer clay, voice, music, film, books, plays, food, and comedy. Relief work, healing, teaching, mending, any human effort that brings more light, and love, into the world counts as creativity to me.

Yet even this may not be enough to assure our place in the world, now, nor for all time.

We have no control over our stories, while we live nor when we’re gone. As I looked through the boxes of photographs my siblings had gathered together, I realized I, as the oldest, was the only one who knew some (but not most) of the people featured, the places, the events, depicted in them. People leave before us, and at the end, we may not leave that much behind. Eventually, no one will care. Life goes on.

All that matters, at the end, is that we do it. That we do the work of our heart. That we fit it in somewhere in our life, whether it’s full-time, part-time, down-time or me-time. It only matters that we do not leave this world with regrets.

All that matters is that we do our best. That we make friends, and cherish family. That we do what we think is right. That we give solace to those who suffer, that we feed those who are hungry, that we home those who are lost. That we forgive those who have hurt us (truly forgive, which means freeing ourselves from the pain they bring us), and heal ourselves, even though we can’t fix it or change them. (I’m still learning about true forgiveness. Not there yet! Getting closer….)

All that matters is that we do the work that heals us, so we can be in the world. It’s the only way we can truly tell our story.

As for the yard sale find, I was a tiny bit dismayed. So soon? My work is considered “worthless” so soon? No Van Gogh moment of discovery?? Wah!

And yet….

At a yard sale, someone found something that spoke to them. They bought it. It brings them joy. They treasure it. They tried to find the artist, and they did. I have a name now.

I myself have quite a collection of thrift shop finds, flea market treasures, and other “uncurated” works of art, craft, and otherwise. Some are signed, but because of the time they were created, there’s not much to learn about the artist. Others are anonymous, but no less treasured.

I love them all, They bring me joy.

That is what I choose to focus on today. What matters, at the end. Fame, fortune, cannot survive. We will not live forever. Even love may fade into obscurity.

But maybe a piece of our life will survive to raise another’s heart. In a song, in a book, a life we save, a bowl, a painting. A little horse sculpture.

Make your best work.

Put it out into the world. Make it visible. Make it accessible.

Do your best.

Then let it go.

LESSONS FROM HOSPICE: Liar, Liar…

There’s a big difference between the “lies” that heal, and the truths that hurt.

I have a friend who took care of her husband, who had Alzheimer’s, until he died a year ago. It was very hard for her, especially since both of them worked closely with families who experience loss, death, and devastation.

You can gain a lot of insight working with others on this hard, sometimes lonely, journey at the end of life. But you don’t get a free pass just because you’ve witnessed this journey with others. In fact, it seems like it’s even harder, if you’re ‘in the field’, when it happens to you. Maybe we feel like we should know how to ‘do it perfectly’. But when it happens to us, there’s no such thing as ‘doing it perfectly’. There is just ‘getting through’.

Caring for a person with Alzheimers, and other cognitive issues, is especially difficult. Their view of the world, their resources for dealing with it, are changed drastically. The old method was to constantly fight for reality–yours! Maybe, with enough reinforcement, we could ‘force’ them back into our world. Tell them the same thing over and over and over, and eventually, they’ll get it.

Sadly, this approach does not work. In fact, it creates more stress, more anxiety, in the person.  People often still have an emotional/social self–they sense they are ‘doing it wrong’. When they are constantly reminded of this, things go downhill pretty fast. Anxiety leads to agitation, anger, and even agression.

Current strategy is to ‘go along’ with the client. “I’m supposed to be at work!” they exclaim. “I have to get ready!” You may choose to ‘go along’–“Sure! But we have to have breakfast first.” “Or, “Sure, we could do that! What would you like to wear to work today? Let’s get dressed. OH…you might want to take a shower first!” “Or you gently ‘remind’ them that today is a work holiday. So maybe they’d like to go for a drive in the country instead?”

This can be difficult, though, because it doesn’t feel ‘honest’. The hardest part of caring for clients with cognitive issues? “The lies!” my friend exclaimed. “Our relationship was based on trust, and respect, and honesty. And then, to keep him calm and at ease, I had to lie to him, over and over and over, every single day!” She felt she had worn away the last thing that connected them, by lying to him.

The best advice I can share with you today is to point you to a person who embraced this situation himself, and wrote about it.  For insight into these strategies, I highly recommend the website Alzheimer’s Reading Room. Bob DeMarco went there and back again, into the world of Alzheimer’s while caring for his mother.

His insights are filled with integrity, insight, and simplicity. He stresses that to create a new, rich relationship with your loved one living with cognitive issues, you need to go to their world. We need to look at their point of view, and understand where they’re coming from. The person we used to know is changed, due to major changes in their brain and cognition. We cannot hold them to who they once were, to what they could have been. We have to work with who they are, and what they’re doing now.

We tend to think in terms of absolutes: Good and evil. Right and wrong. Truth and lies. Even the grey areas of white lies and fibs can feel overwhelming when you have to practice it over and over, day after day after day.

Alzheimer’s is not a world of absolutes. For a person in this world, it is a place of ever-changing reality, as memories fade, as dreams flood into waking time, as it gets harder and harder to understand what’s what.

DeMarco says, over and over: You have to go to their world. You have to see through their eyes, understand through their experience, work with their fears and anxiety.

I was going to go into a big long spiel about lying vs. going to Alzheimer’s world, and kids and Santa Claus/Easter Bunny/Flying Spaghetti Monster, but there’s just this: When we talk to kids about death and dying, sickness, bad accidents, we frame it so it meets them where they are. A four-year-old grieving for a dead pet needs something different than a 12-year-old, etc. The same when we are caring for/living with/working with people with cognitive issues.

A friend told me how she struggled what to tell her dad, who had dementia, about her mom/his wife, who had just died. “When he asks where she is, do I tell him the truth”, she agonized. “Then he reels with the shock and weeps. Two hours later, he asks me again. I don’t want to lie, but telling him the truth is like torturing him with harsh sorrow, over and over, and over again. It’s new to him every time.”

Eventually, when he asked, she told him she (her mom, his wife) was ‘away’. No, no one was sure just when she’d be back, but she was okay, and sent her love, and they would see her again ‘in awhile’. This reassured him, until the next time he asked.

This went on for months, until one day, he asked her hesitantly, “I have a feeling Mom isn’t coming back. Am I right?” She then told him yes, but again, gently, simply agreeing. And reassuring him that she (the mom) was okay, they would be okay, and that she (the daughter) was there for him. He wept, but was not devastated. The question faded gradually away.

Understand they can no longer be in our world, but we can visit them in theirs. Have compassion. Understand there is a difference between lying to manipulate, to gain something you don’t deserve, or to avoid consequences of your actions–and meeting them where they are, with love, with patience, with respect and kindness, in their world.

If your religion believes that God would never give someone more hardship than they can handle, then understand a person with dementia cannot handle hardship like they used to. Accommodate them.

It’s not easy–it never is.  The role of the caregiver can be lonely, and already so very, very hard. So please don’t agonize over having to ‘lie’. What you are really doing is not hurting someone  who cannot understand, or process, the hurt. The ‘lie’ you tell to create peace in someone’s heart who has no way to heal–to avoid giving them pain they cannot protect themselves from–that ‘lie’ is actually kind, compassionate, and healing.

So be kind to yourself, too. The only people who would judge you, just don’t know. (Yet.) The ones who know? Believe me, they understand. And they are supporting you in spirit, every step of the way.

LESSONS FROM HOSPICE: Nobody Dies Alone (Not)

Recently California passed  Right to Die legislation, allowing the terminally-ill to seek their physician’s assistance in committing suicide.

Many people have valid arguments against this legislation. Almost everyone I’ve met who works in hospice and palliative care are dismayed. Too often, hospice is not called into such a situation until the last minute. Most hospice clients receive care for less than 14 days. More than half of those clients, less than a week. Many, if not most, of the issues that Right to Die legislation addresses, could be alleviated by hospice and palliative care, including patient comfort and support. Research shows that clients in hospice care live longer and suffer less than those in standard care.

But that’s not what moved me to write today. There was a letter to the editor from a grieving person, who provided round-the-clock care for their spouse until the very end. The person said hospice can’t do what they did–sit with their spouse until their loved one died.

Which, believe it or not, is not always a good thing.

Somehow, being with someone while they die has been synonymous with ‘best practice’. “Nobody dies alone!” And when people can’t be there for that final moment, they often feel a sense of failure and guilt.

Meanwhile, those of us who are involved in hospice care, notice something totally different. Something that we noticed in almost all our cases….

Most people die alone. And though obviously we cannot know what someone’s final thoughts are, it sure looks like their choice.

We’re often called on for what we call a ‘vigil’. There’s no one to sit with the person who seems to be actively dying–family members are out of state, or can’t be there 24/7. Volunteers sit with the client in shifts. But we never provide round-the-clock care. And that’s a good thing, because the truth is, sometimes people need that time to themselves, to choose when they would die.

Read that again: The circumstances where someone in hospice died was often so responsive to what was going on around them–even when they were unconscious or unable to respond–it looked like they’d chosen to leave at a specific time.

In the five years I served as a hospice volunteer, I saw many extremes in outcomes around this.

I had a client who was mobile, and aware, who had “months to live”, who died within a day of her own daughter (also her caretaker) being diagnosed with breast cancer. (Her daughter chose put her in respite care for the weekend–two days–just so she could process the news.) As if my client were saying, “I’ll be okay, but you need to take care of yourself now.”

I know two people, siblings, who sat with their dying parent all night. When it was one sibling’s turn, they fell asleep briefly.  And in that short span of time, their parent died. As if they were saying, “I love you, and I don’t want this to be your last memory of me.”

I know another client who died, again while a family sat holding their hand, asleep. It was the family member they’d had the most contentious relationship with. As if they were saying, “Please forgive me.”

Another client who had mere days, perhaps hours, to live, held on for over three weeks. Immobile, usually unresponsive, unable to eat nor drink anything except a few tablespoons of ice cream and soda during that time, yet they hung in there. One of their attendants, who’d become close with her, was expecting a baby. She was two weeks overdue. I believe my client was waiting for the baby to come.

I don’t know how many times I, and my fellow volunteers, someone would say to us, “We kept watch, we took turns, someone was there with them every day, every minute! They were never left alone! And then one night, on my shift, I went to the bathroom–I was only gone five minutes! And when I came back, they were gone. I still feel awful.”

The sense we are all left with is, sometimes there seems to be a choice, when to stay, and when to go.

Sometimes it seems obvious the person is dying doesn’t want their loved one to witness that.  For whatever reason, they wait until that tiny moment of time where they are alone–and they go.

Sometimes it seems they are waiting for someone–an out-of-state family member, a new baby–to arrive. They hang in there until the person either comes, or until the client can’t hold on any longer.

Sometimes it seems that they are waiting to hear something.  Perhaps someone who has to let go, someone who has to tell them, “It’s okay, it’s hard, but I’ll be okay. You can go”. Or for someone to say those four powerful statements: “I forgive you.” “Please forgive me.” “Thank you.” “I love you.”

So if this has happened to you, please don’t despair. There is no predicting how close someone is to death. Hospice and palliative care do the most good the sooner they can be brought in to provide services.

But even with the best of care, the best intentions, this was one of the most amazing, the most…okay, I’ll say it: miraculous thing I saw in hospice.

This is something I’ve been thinking about for a long time, and it’s surprising difficult to write about. But it’s important.

How our loved one leaves us, is often their last gift to us.

 

 

 

GOMEZ SAYS GOODBYE

We have everything we need to know, right here in our hearts.

More musings on the grief writing workshop I teach at Home Healthcare and Community Services here in Keene, NH….

For each week of the class, there’s a central topic for our journaling or free writing exercise. Some topics allow us to talk about who we were, and where we are now after the death of a loved one. Some encourage us to remember them in a different way. Some acknowledge the difficult nature of our relationship with them. Some “point us toward home, so we can go there…” (A quote from DEAN SPANLEY, a remarkable, gentle and sweetly funny movie about death, grieving, and redemption.)

There’s one particularly powerful exercise we do in the writing workshop. It’s so powerful, I’m afraid I’ll give away the punchline. But it’s also so healing, it would be a sin not to share it with a wider audience….

It’s something I structured, sort of aim the sessions toward, so we get there at just the right time. Last week was the proper time.

I ask everyone to imagine the deceased in a place–it could be heaven, it could be nirvana, it could be in an alternate universe, it could even be in our dreams. It’s a place where they are safe, and loved, and happy. A place where they are fully healed, in mind, body and soul. A place where they are at their highest, most evolved self. A place where no matter what their faults or failings were, no matter how much they’ve already suffered or given, or loved, they are the best person we’ve always dreamed they could be.

“Write a letter,” I say to the class. “From them, to you.”

This always draws a lot of confusion and questions. I usually have to repeat it a few times. There are frowns, and pursed lips, and sighs.

Then the writing begins.

And then come the tears.

I am always astonished, when we finally share what we’ve written. It’s as if people have really stepped outside themselves, and delved into the heart of that person. The things we see, and recognize, and understand and finally accept, are incredible.

It’s a letting go of what could have been. It’s accepting what it was, and is. It allows hope to sprout the tiniest, most delicate green leaves.

And it lets the healing begin.

It’s never failed me, this exercise. I wrote about this the first time I did it, with a complicated death that had haunted me for decades.

I did it again last week with my beautiful cat Gomez.

It was a funny night to begin with. Three of us selected animals to write about. It felt a little disrespectful at first–People before animals, right? Except we were also accepting that the loss of a beloved pet can be just as rattling, especially since they are often the very thing that soothes us during other, larger losses.

And so we wrote a letter from our pets, to us.

In my opening sentence, I immediately saw how empathic this exercise really is. I wrote, “Dear kind lady….” Because, of course, Gomez would have no idea what my name was. And being a cat, he probably wouldn’t care.

Here’s the small miracle: All three of us did the same. Realized our pets don’t “know” our names. But they know who we are to them. One writer started her letter with “Dear Mom”, because that’s who her dog would think she was.

Here’s my letter from Gomez:

Dear kind lady,
When I saw you at the shelter with your child, I knew I was going home with you. I saw you go to each cage, check out each cat. I saw you trying to connect with each one.

“I want an older cat,” you said to the shelter person. “I want a cat who really really really needs a home.”

But none of those cats would play with you. They knew I was meant for you. They wouldn’t give you the time of day–they knew it was my turn.

Finally, after coming to me 3 times–and every time I tried to tell you, I tried to show you–“Me! I’m the one! It’s me you want!”….

And finally, though you said I was too beautiful, and too young, you said I was the one.

I charmed everyone, didn’t I? Even Chai. Even Tuck. Even Nick.

I brought you mice, and birds, and I slept on your bed. You gave me a good home.

Yes, there was a bad man, and yes, it hurt. It hurt so much.

But that pain is gone. It is no more.

The only pain I feel now is the pain in your heart, the part of you that blames yourself for what happened.

It’s not your fault, kind lady. It’s not your fault. Be at peace.

My time with you was lovely. You cared for me, and loved me, and kept me safe. You gave me a good home.

Someday there will come another cat, a cat that needs a good home. Open your heart again, your kind and loving heart. Give that cat a home, a hearth, a sofa to sleep on, dogs to tease and torment, food to eat and saucy mice to chase.

Don’t grieve for me, kind lady. I don’t regret a thing.

Everything we need to know, is already in our hearts.

All we have to do is be silent. And listen. Truly listen.

Goodbye sweet boy cat.

INVISIBLE SUPPORT

HOW MUSEUM DISPLAY REMINDS ME OF HOSPICE

I’m taking an online class on making mounts for museum display through the Northeastern States Conservation Center. A mount is the supporting structure that allows an artifact–a bone, a book, a bonnet, a basket–to be safely displayed in an exhibit. I want to learn more about making such displays, for my new series of artwork.

I’m in way over my head. Almost four weeks in and I’m still three weeks behind. There is so, so much more than I could ever have imagined to the incredible world of mount making. Mounts can be as creative and beautiful as any art form. And like many art forms, the discipline is formidable. So many things to consider: How fragile is the artifact? What do you want the viewer to see? What materials will not interact and damage the artifact? What will protect it from shock–everything from bumps and shakes to vibrations from passing trucks and earthquakes? The reading requirements looks about as manageable as WAR AND PEACE, without all the Russian names.

I’ve been reading an article called MOUNTMAKING by Pam Gaible, then Mount Making Supervisor at the Field Museum of Natural History. Ms. Gaible presented it at the American Association of Museums Convention in 1991.

I was fascinated by this paragraph:

How do you make a mount?
There are lots of factors to be considered when making a mount. A very important one is to have open channels of communication between the developer, mountmaker, conservator, and designer.

First the developer compiles an artifact list. Then the mount shop supervisor, the developer, and the conservator review the artifact list and create a photo book of the artifacts. The book contains a page for each artifact, which shows photo, measurements, material notes, and conservation concerns for mounting of the objects. It also contains a rough sketch of how an object can be mounted and a time estimate for making that mount.

She shows a few pages from such a book. The drawings and illustrations are beautiful. It looks like an artist’s sketchbook.

I once had the honor of viewing Cynthia Toops‘ sketchbook. Cynthia is one of my favorite polymer clay artists. Her work has a narrative feel that resonates with me. Sometimes playful, always thoughtful, charmingly folkloric yet sophisticated. Her sketchbook was as beautiful as her artwork, with tiny, exquisite drawings, details and notes. I am reminded that sometimes our tools and processes, just like museum mounts, support our art. And yet are so very artistic in themselves.

Then I read this paragraph, describing kinds of mounts:

* A typical disappearing mount. A mount that you aren’t aware of
when you view the object.
* A mount that keeps an object from migrating in the case.
* A mount that absorbs shock.
(This shock may be as small as the vibration of air conditioning
equipment or as large as an earthquake) [West Coast Style].
* A mount that helps preserve the existing structure of an object.
* A mount that is semi-permanently attached to the artifact and
functions as a handle and support.

(Rather than handling the object, you handle the mount.)
* A mount that supports an object while at the same time creates
the illusion that the mount is something else.
(Such as a mount that looks like a person, horse or campfire.)

I know this is weird–Lord, I can find synergy in anything these days!! But I thought this sort of sounds like my grief writing workshop.

A disappearing mount….that you aren’t aware of when you view the object. My purpose is to get people writing and talking about their grief. But it has to be subtle, almost invisible. Almost effortless. I do this by keeping the writing tasks short and directed. Even the poetry writing exercises are originally designed to be used with elementary school children.

But simplicity does not mean meaningless. Even the “easy” outlines create powerful results.

* A mount that keeps an object from migrating in the case. We use topics and time limits so that people can’t sink into their grief. Everything is quick, moves along. We take time to share, and cry. But we aren’t left to wander off into our misery.

* A mount that absorbs shock. A person who is grieving has suffered an enormous blow to their system. Everything hurts. Nothing brings relief. In our class, people feel like they can relax. They can cry. They can say what they really feel. Because everyone there knows what it’s really like. As one writer said, “It’s like we’re all on the same lake in a different boat!”

* A mount that helps preserve the existing structure of an object. We are deeply changed by grief. We will never be the same. But we are also still…..us. We remain. We survive. We go on, alone.

* A mount that is semi-permanently attached to the artifact and functions as a handle and support. People don’t stay long in the support groups. They come when they are ready for something more, something to help them move along. They get what they need. They heal. They go back to their lives, a little stronger, a little more resilient. They move on.

A mount that supports an object while at the same time creates the illusion that the mount is something else. I had to think about this for a moment. Then it dawned on me….

People think they come to a support group or a support workshop for help. They think we have the answers, or a process that will help them feel better.

But all we do is provide a safe place for them to talk. To share. To contemplate what this loss means to them. They do the hard work, the heavy lifting. They look at the things they’re afraid to say, or think, because that might mean they’re “not a good person”. (Almost all deaths are complicated, and some are more complicated than others.)

They dig deep into themselves, and let the light in.

They share with others who are in the same place. They sympathize. They offer comfort, courage, support. Wisdom. Understanding.

They do this for themselves, and for each other. We, the facilitators, sit and look on in astonishment.

Ah, yes, museum display and hospice/bereavement services. Who knew how much they have in common?!

HOW TO VISIT A SOMEONE WHO’S IN A NURSING HOME Part 1

Recently I accompanied my mom to visit two of her good friends in a nursing home, one of whom I wrote about yesterday.

I could tell Mom felt a little awkward. One woman was napping in her chair. “Don’t wake her!” mom exclaimed. (Okay, whispered. Exclaiming would have awakened her fried.) She wanted to leave immediately. Unfortunately, Robin sat on her bed and set off an alarm. Erna awakened, and fortunately, was happy to see us.

At first, with both there was a lot of cheerful chatter. Mostly the old stories told and retold. When the stories ran out, Mom wanted to leave.

I have vivid memories of my dad doing the same, years and years ago. There was an older woman, who grew up in Scotland, who worked for my dad in our family restaurant. She retired; soon after, she was confined to a wheelchair and eventually moved into a nursing home. She had no family here in the U.S. except for her son, who rarely visited her. I remember “making the rounds” every Sunday after church–out to the nursing home in the country to visit Bessie, back to town to visit my grandparents, and then maybe back to the “store” for an ice cream cone.

Bessie adored my father, and was always happy to see us. Dad would chat about ordinary things–the restaurant, our doings and comings and goings. I remember him bringing her flowers from our garden.

But sometimes, especially near the end of our visit, she would cry and beg Dad to get her out of there. As time went on, and she became more frail, this happened more and more, until every parting drew tears.

I remember standing there, embarrassed, wordless, having no idea what to do. I would look at my Dad. What would he do? How would he handle this?

Well, my dad would get embarrassed, too. He would weakly try to reassure her that everything was alright, and we’d all make a fast dash for the door.

In my later years, I pretty much kept up the family tradition. I felt awkward visiting folks in such places, even hospitals. I would agonize over what to bring. Flowers? Candy? Can they have candy?? A book? Maybe they’ve already read it…. I would fill the room with cheerful chatting, clumsily reassure them when things go tearful, and beat a hasty retreat.

I’m still not the soul of compassion, but I try to do better now. Because I know better.

The old rules of how to behave are gone. The circumstances have changed, and so must our patterns.

I try to see what is needed, and what is wanted. I listen. I observe. I touch.

People who have been in such places a long time have different needs. No, I take that back–they have the same needs. But we have to fill them differently.

STOP

Relax and be present.

It’s okay to be with them as they sleep. Sleep is important, yes. Especially near the end of life, deep work takes place during sleep. And it’s still rude to awaken someone suddenly, especially with shaking and loud voices. But perhaps you can sit quietly by them, gently taking their hand. Many times they will sense your presence, and awaken gently. If not, be assured they still sense you on some deep level. Even 20 minutes simply sitting quietly, and holding their hand, can be deeply reassuring.

However, don’t stare at them. Waking up to someone watching you sleep can be icky. Sometimes I just take those moments to think, or daydream. But it’s okay to bring a book if it’s hard to sit quietly.

TOUCH

Taking their hand can seem awkward and forward. When have we ever held hands with our friends, or our family, after we’re five? But people need the touch of human hands, now more than ever. It may be years since someone has hugged them, or stroked their hair, or simply held their hand.

No need to envelop them in a bear hug! I start by nonchalantly taking up their hand and cupping it gently. If someone does not want to be touched, then they will withdraw their hand. But if they welcome it, they will not. They may even clasp your hand tighter.

My friend Bonnie Blandford taught me the “hospice hug“. Instead of our quick little social hugs, it’s simply a longer hug where you let the other person choose when to stop. In fact, if they pull back after a few seconds out of habit, try holding gently for another few seconds. You’ll be surprised how many people will relax and hang on for dear life. I did this with a friend recently who had suffered a dreadful loss. When she realized she could have a long hug, she melted into my arms, and began to sob. Yep, some guys in the group got nervous, and began to make jokes about lesbians. I ignored them all. My friend had lost a new grandchild. She needed a deep hug.

LISTEN

Sometimes people want to be entertained with light chatter and news of the outside world. But sometimes they are scared, or anxious, or lonely. They yearn for richer connection. If they are scared, don’t pooh-pooh their fears. What are they afraid of? What’s making them anxious? You don’t need to fix their problems. But we all appreciate someone who listens to them!

By the way, Erna had trouble speaking and forming words. My mom assumed she was “out of it.” By sitting closer and listening carefully, it became obvious that Erna was actually quite aware and responding appropriately to everything we said. She just needed more time to respond.

STAY

I’m not so nervous about people crying now. I just keep the Kleenix coming until they’re done.

OBSERVE

As they talk with you, listen deeply. Watch “the light”. Note where they are making light of something that actually pains them. Observe the topics that make them light up with joy. For one of Mom’s friends, it was a passing comment about our dogs. She asked, “What kind of dog?” We told her. I asked her if she’d ever had a dog. Her face lit up. “Oh, yes!” She told us several stories, and then got to the one that was painful–the family dog hit by a car, and how terrible it was. The pain, the suffering, the family’s anguish. All these years later, and it was still hard. On impulse, I told her a quick version of the delightful movie, Dean Spanley*. A dog who is killed suddenly, describes it as something he didn’t understand. His former master asks if he suffered. No…no…. There was no pain. It was time to go home. How did he get there? He simply turned towards home, and went there. When asked how he knew where home was, he said, “One just knows. So you turn that way, and go there.” Erna smiled sweetly and sighed.

BE A WITNESS

Tell them about the gifts they’ve given you–the gift of their friendship, their kindnesses, their thoughtfulness. If they were feisty friends, tell them how much you admire their courage to be themselves. Though I didn’t know either woman, I knew my mother treasured their friendships, and said so. To Frannie, who changed her dress on her daughter’s wedding day, I said, “That was such a gift you gave your daughter!”

Ask questions, especially if you don’t know them well. Don’t interrogate–it’s not a fact-finding mission. Just show interest in what they have to say, how they lived their lives, what gives them joy. When they tell you hard things, say, “That must have been hard” and let them tell you more. When they tell you beautiful things, ask them what their favorite part was. Let them tell their stories.

READ

When I do hospice visits, I take books. I take one for me to read to myself and one to read aloud–a book of poetry, or short stories, or novels where individual chapters can stand alone. If the person is religious or spiritual, I’ll bring a book of prayers or blessings. I’ve found that we never lose the desire to be read to, provided the person is up for it. It’s a way to take a break from conversation, a way for them to simply listen, even a way to ease them into sleep. My daughter loves the scene in the movie WIT, where the main character (who is dying) accepts her old teacher’s offer to read to her. John Donne gets voted down, but it turns out the children’s book The Runaway Bunny is beautifully appropriate.

FORGIVE YOURSELF

It’s okay to be thankful it’s not you lying there in the nursing home. They know you feel that way. And it’s okay. You’re not a bad person. Just human. And they know that, too.

There’s more, but I forgot.

This is just quick overview of how to make such visits easier, deeper and fun. I would LOVE to hear your suggestions, too.

How did I get so smart? Listening to my daughter speak of her experiences working in such institutions–nursing homes, assisted living units, rehab wards. And my hospice training, which was rich with insights and practical advice.

*Dean Spanley is my new favorite movie. It starts slow and quiet, fueled by odd and cantankerous British humor, with the most incredibly beautiful and poignant ending. WATCH IT TO THE END!! I fell asleep halfway through the first time I watched it. Fortunately, I made myself watch it again. STAY AWAKE, or watch it twice, and I think you’ll find yourself deeply touched by its message. If you love dogs, you’ll find it triply delightful. But you don’t have to be an animal lover to appreciate its message.